Opportunity Information: Apply for HRSA 22 145
The Hereditary Hemorrhagic Telangiectasia (HHT) Center grant (Funding Opportunity Number HRSA 22 145) is a federal discretionary funding opportunity offered by the U.S. Department of Health and Human Services through the Health Resources and Services Administration (HRSA). It was released on March 18, 2022, with an application deadline of May 17, 2022. HRSA planned to make a single award under a cooperative agreement mechanism, meaning the funded organization would not only receive financial support but would also be expected to work in close partnership with HRSA during implementation. The program falls under the health funding activity category and is associated with CFDA number 93.110.
The central goal of the award is to reduce illness and prevent avoidable deaths linked to hereditary hemorrhagic telangiectasia, a rare inherited disorder that can cause abnormal blood vessel formation and serious complications such as bleeding and organ involvement. To do this, HRSA intended to fund one national center designed to strengthen the way HHT care is delivered across the country. A major focus is improving patient access to appropriate services and ensuring care is coordinated effectively, which is especially important for rare diseases where specialized expertise may be limited and patients often need multidisciplinary evaluation and long-term follow-up.
In addition to direct care coordination and access expansion, the funded center would be responsible for building a de-identified, aggregate data collection registry. The purpose of this registry is to generate better insights into the natural history of HHT, how patients are being treated, and what outcomes result from different approaches to care. By emphasizing de-identified and aggregate data, the opportunity highlights a public health and learning-health-system approach: collecting information that can guide quality improvement, identify gaps in care, and support broader understanding of a rare condition while protecting patient privacy.
The maximum federal funding amount listed for the award is $2,000,000 (award ceiling), and HRSA expected to issue one award in total. Eligibility is broad and includes multiple types of public and private entities. Eligible applicants include state, county, city or township governments; special district governments; independent school districts; federally recognized tribal governments and other tribal organizations; nonprofit organizations with 501(c)(3) status (excluding institutions of higher education); for-profit organizations (including entities other than small businesses as well as small businesses); and other entities as further clarified in the opportunity’s eligibility language. Overall, the opportunity is structured to support a single, national-level hub that can organize expertise, improve access and coordination for patients, and create a usable data foundation to advance understanding of HHT and the results of treatment over time.Apply for HRSA 22 145
- The Department of Health and Human Services, Health Resources and Services Administration in the health sector is offering a public funding opportunity titled "Hereditary Hemorrhagic Telangiectasia (HHT) Center" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.110.
- This funding opportunity was created on Mar 18, 2022.
- Applicants must submit their applications by May 17, 2022. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- Each selected applicant is eligible to receive up to $2,000,000.00 in funding.
- The number of recipients for this funding is limited to 1 candidate(s).
- Eligible applicants include: State governments, County governments, City or township governments, Special district governments, Independent school districts, Native American tribal governments (Federally recognized), Native American tribal organizations (other than Federally recognized tribal governments), Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education, For profit organizations other than small businesses, Small businesses, Others (see text field entitled Additional Information on Eligibility for clarification).
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