Opportunity Information: Apply for HRSA 22 145
The Hereditary Hemorrhagic Telangiectasia (HHT) Center grant (Funding Opportunity Number HRSA 22 145) is a federal discretionary funding opportunity offered by the U.S. Department of Health and Human Services through the Health Resources and Services Administration (HRSA). It was released on March 18, 2022, with an application deadline of May 17, 2022. HRSA planned to make a single award under a cooperative agreement mechanism, meaning the funded organization would not only receive financial support but would also be expected to work in close partnership with HRSA during implementation. The program falls under the health funding activity category and is associated with CFDA number 93.110.
The central goal of the award is to reduce illness and prevent avoidable deaths linked to hereditary hemorrhagic telangiectasia, a rare inherited disorder that can cause abnormal blood vessel formation and serious complications such as bleeding and organ involvement. To do this, HRSA intended to fund one national center designed to strengthen the way HHT care is delivered across the country. A major focus is improving patient access to appropriate services and ensuring care is coordinated effectively, which is especially important for rare diseases where specialized expertise may be limited and patients often need multidisciplinary evaluation and long-term follow-up.
In addition to direct care coordination and access expansion, the funded center would be responsible for building a de-identified, aggregate data collection registry. The purpose of this registry is to generate better insights into the natural history of HHT, how patients are being treated, and what outcomes result from different approaches to care. By emphasizing de-identified and aggregate data, the opportunity highlights a public health and learning-health-system approach: collecting information that can guide quality improvement, identify gaps in care, and support broader understanding of a rare condition while protecting patient privacy.
The maximum federal funding amount listed for the award is $2,000,000 (award ceiling), and HRSA expected to issue one award in total. Eligibility is broad and includes multiple types of public and private entities. Eligible applicants include state, county, city or township governments; special district governments; independent school districts; federally recognized tribal governments and other tribal organizations; nonprofit organizations with 501(c)(3) status (excluding institutions of higher education); for-profit organizations (including entities other than small businesses as well as small businesses); and other entities as further clarified in the opportunity’s eligibility language. Overall, the opportunity is structured to support a single, national-level hub that can organize expertise, improve access and coordination for patients, and create a usable data foundation to advance understanding of HHT and the results of treatment over time.Apply for HRSA 22 145
- The Department of Health and Human Services, Health Resources and Services Administration in the health sector is offering a public funding opportunity titled "Hereditary Hemorrhagic Telangiectasia (HHT) Center" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.110.
- This funding opportunity was created on Mar 18, 2022.
- Applicants must submit their applications by May 17, 2022. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- Each selected applicant is eligible to receive up to $2,000,000.00 in funding.
- The number of recipients for this funding is limited to 1 candidate(s).
- Eligible applicants include: State governments, County governments, City or township governments, Special district governments, Independent school districts, Native American tribal governments (Federally recognized), Native American tribal organizations (other than Federally recognized tribal governments), Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education, For profit organizations other than small businesses, Small businesses, Others (see text field entitled Additional Information on Eligibility for clarification).
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Frequently Asked Questions (FAQs): HRSA Hereditary Hemorrhagic Telangiectasia (HHT) Center Grant (HRSA 22-145)
What is the HHT Center grant opportunity (HRSA 22-145)?
The Hereditary Hemorrhagic Telangiectasia (HHT) Center grant (Funding Opportunity Number HRSA 22-145) is a federal discretionary funding opportunity from the U.S. Department of Health and Human Services (HHS) through the Health Resources and Services Administration (HRSA). It is designed to support one national center focused on improving care delivery for people with HHT.
Which federal agency is offering this funding?
The funding is offered by the U.S. Department of Health and Human Services (HHS) through HRSA (Health Resources and Services Administration).
What is the primary goal of the award?
The central goal is to reduce illness and prevent avoidable deaths related to hereditary hemorrhagic telangiectasia (HHT) by strengthening how HHT care is delivered nationwide, improving access to appropriate services, and ensuring care is effectively coordinated.
What is HHT and why is it a focus of this program?
Hereditary hemorrhagic telangiectasia (HHT) is described as a rare inherited disorder that can cause abnormal blood vessel formation and serious complications, including bleeding and organ involvement. The program focuses on HHT because specialized expertise can be limited, and patients often require multidisciplinary evaluation and long-term follow-up.
How many awards did HRSA plan to make under this opportunity?
HRSA planned to make a single award in total.
What is the maximum amount of federal funding available?
The maximum federal funding amount listed is $2,000,000 (the award ceiling).
What type of funding mechanism is being used?
The award is under a cooperative agreement mechanism. This means the funded organization would receive financial support and also be expected to work in close partnership with HRSA during implementation.
What does a cooperative agreement imply for the funded organization?
Based on the description provided, it implies an active relationship with HRSA during the project. The recipient would not only carry out the work but would also coordinate closely with HRSA throughout implementation.
What is the main program model HRSA intended to fund?
HRSA intended to fund one national center that acts as a hub to strengthen HHT care delivery across the country, expand patient access to appropriate services, and improve care coordination.
What kinds of activities or responsibilities are emphasized for the funded center?
The funded center is expected to focus on improving access to appropriate services, coordinating care effectively, and building a de-identified, aggregate data collection registry to improve understanding of HHT and treatment outcomes over time.
Is this opportunity focused on healthcare?
Yes. The opportunity falls under the health funding activity category.
What is the CFDA number associated with this program?
The opportunity is associated with CFDA number 93.110.
When was the opportunity released?
The opportunity was released on March 18, 2022.
What was the application deadline?
The application deadline was May 17, 2022.
Who is eligible to apply?
Eligibility is broad. Eligible applicants include state, county, city or township governments; special district governments; independent school districts; federally recognized tribal governments and other tribal organizations; nonprofit organizations with 501(c)(3) status (excluding institutions of higher education); for-profit organizations (including small businesses and entities other than small businesses); and other entities as further clarified in the opportunity's eligibility language.
Are nonprofit organizations eligible?
Yes. Nonprofit organizations with 501(c)(3) status are eligible, excluding institutions of higher education.
Are for-profit organizations eligible?
Yes. For-profit organizations are eligible, including small businesses and entities other than small businesses.
Are government entities eligible to apply?
Yes. Eligible applicants include state, county, city or township governments, special district governments, and independent school districts.
Are tribal governments and tribal organizations eligible?
Yes. Federally recognized tribal governments and other tribal organizations are included as eligible applicants.
Is the funded center expected to support care beyond a local or regional area?
Yes. The award is described as supporting a single national center designed to strengthen HHT care delivery across the country.
What is the purpose of the data collection registry mentioned in the opportunity?
The registry is intended to generate better insights into the natural history of HHT, how patients are being treated, and what outcomes result from different approaches to care. It is also positioned as a way to guide quality improvement, identify gaps in care, and support broader understanding of the condition.
What does it mean that the registry data is "de-identified" and "aggregate"?
It means the registry is expected to collect information in a way that protects patient privacy, focusing on de-identified information and reporting or analyzing it in aggregate rather than as personally identifiable patient-level data.
Why does the opportunity emphasize care coordination and access?
The opportunity notes that rare diseases like HHT can have limited specialized expertise and patients may need multidisciplinary evaluation and long-term follow-up. Improving access to appropriate services and coordinating care effectively are presented as key strategies to reduce illness and prevent avoidable deaths.
What broader approach to improvement is described for this program?
The opportunity describes a public health and learning-health-system style approach: collecting de-identified, aggregate information that can inform quality improvement, reveal gaps in care, and increase understanding of HHT and the results of treatment over time.
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